“Sonia Debbarma’s illness and treatment”
Ms.Sonia Debbarma is a 17-year-old child studying in Don Bosco School (Agartala) and is currently suffering from AVM (Arteriovenous Malformation).
Description of the Disease :
A brain arteriovenous malformation (AVM) is a tangle of abnormal blood vessels connecting arteries and veins in the brain.
The arteries are responsible for taking oxygen-rich blood from the heart to the brain. Veins carry the oxygen-depleted blood back to the lungs and heart. A brain AVM disrupts this vital process.The arteries and veins being present at different pressure ruptures due to the increase in Blood Pressure causing high risks of a brain stroke or vision impairment.
This is a very rare disease affecting only 1 percentile of the population.
Her treatment began in February 2017 when she experienced chronic pain inside her head.
Her operation was known as embolization which was an operation done through her veins to a site of AVM, hence blocking it with a coil-like gluey substance while allowing minimal blood flow through the AVM.
Her first operation was successful however her blood vessels being very thin, were susceptible to rupture due to increase in Blood Pressure.
Her next operation was scheduled in November this month nutshell being a student had matric examination and 11th readmission issues so the operation delayed.Unknowing of her AVMs condition they planned on coming to Chennai on December 23rd night, she experienced severe pain and seizures in her head and fell unconscious.Seeing the urgency of the situation the family flew to Chennai on 25th Dec thus she got admitted on the same date.
She underwent another explanation operation to seal out the ATM but her blood that had leaked before going to Chennai remained stagnant. The Doctors found about 1.4litres of CSF and Blood blocking the brain which raised the risks of her permanently losing her vision and even brain stroke. Soon she went through an open head surgery to get her blood removed through a temporary drain (A pipe connecting the site of rupture to an external bag pulling out fluid ).Roughly 1.2 liters of blood and CSF was collected which went over a period of 4-5 days draining 10ml of the substance per hour.
She experienced severe chronic pain since the brain is very sensitive gave out series of minor shocks.
She was expected to be discharged after 3days prior to the temporary drain removal but sadly on the day of discharge her CT scan reports showed traces of Hydrocephalus (Condition where her veins fail to drain the residual CSF mainly responsible for maintaining a healthy brain by absorbing older residual impurities) also known as water clogging hence the doctors did a third surgery to place a VP shunt (Permanent tube that drains out the older stagnant CSF out of the brain to her stomach where they get dissolved ).
Her condition is not fully stable yet due to her weakness and AVM blood flowing still sending out impulses randomly she needs the last Gamma treatment to fully cure her illness
Since this treatment is financially very heavy the family has run out totally and a total of ₹7.50+Lakh money has been already spent so far.We request everyone to help the young kid fight through to see another day.